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The Tao of Phantom

~ The Living Labyrinth of The Phantom of the Opera.

The Tao of Phantom

Category Archives: disability

Reclaiming Our Bodies And Minds Once More! #ROBAM2018 #Disability

08 Thursday Mar 2018

Posted by Sarah Erik in disability

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conferences, disability, gender, politics

So this past week-end was the 2018 Reclaiming Our Bodies And Minds conference that I’ve been looking forward to all year. And I have to say, this one was particularly awesome! I’m so glad I went! Mind you, I always am. But, as I said, this year especially rocked! Unfortunately, I wasn’t able to make the events on the Friday night because of a very long, rather taxing meeting up at my university (more on that in future posts). Which I was bummed about, as it meant I missed the community fair and keynote! Damn! So I joined up on Saturday for that day’s sessions.

First of all, one of the awesome things about ROBAM is that it’s such a treat to be in a truly accessible space! They had the conference program in Braille and other alternative formats. But best of all, they had PSWs (Personal Support Workers) there who were able to assist me with finding the rooms where the sessions were, finding the washrooms, and finding the food. And accessing them went much more smoothly than last year! Or at least, it felt like it did. And that was such a relief, because it meant that I didn’t have to rely on wrangling random people for help like I usually do! So that meant I was really able to just relax and enjoy the conference rather than worry about how I was going to find the next session, the loo, or the lunch. And on that note, the lunch was delicious!

And then, the actual sessions themselves were some of the best I’ve heard at ROBAM in years! The day opened with a panel on thinking about how we can make spaces and events more truly accessible, shifting from a Disability rights framework to a justice framework, and thinking about accessibility as an intent to be inclusive rather than as a list of items to check off. Then we went into the first split sessions of the day.

The first one was a truly brilliant workshop on politicizing the experiences of loneliness of Mad and Disabled people. And Wow, it’s one I’m going to be thinking about for a long time to come! I went because it struck me as being super relevant to the work I do here with Phantom. But it ended up having relevances beyond that, too, in fact to my doctoral work. Because, much environmental activism these days centres on the idea of relocalizing – lives, communities, economies, etc, and much of the argument for this is that it will cure the epidemic of loneliness created by neoliberalism, or even by any form of capitalism depending on how radical the thinker you’re reading is. But it often seems to me that this desire to relocalize contains a lot of nostalgia, at times even fauxstalgia, that fails to take into account the kinds of loneliness that Queer, Mad and Disabled people experience – loneliness due to exclusions based on differences in communication style, body configurations, desire, cognition, sensory perception, and mental state. And these degrees of difference have, historically, required more than just belonging to close-knit communities with strong social ties to bridge. Indeed, historically, Queer, Mad and Disabled folks have often had to leave the communities they came from in order to find acceptance. But this workshop gave me a great deal to think about in terms of ways of possibly speaking back to this issue! I’ll write more about it in future posts.

Then in the afternoon, there were a couple of sessions on racism, displacement, sacred space, madness, and personal history. They were really excellent, and they also gave me a lot to think about! In particular, they gave me a lot to think about with regard to “unofficial” sacred spaces such as concerts or, for that matter, Phantom, and how these can be double-edged for Queer, Mad and Disabled folks. Because, they’re/we’re less excluded than they/we all too often are in official sacred spaces, but nevertheless there’s still an assumption of heteronormativity among the majority of users of these unofficial spaces that creates exclusions for them/us there too. So that was really interesting!

Then after dinner, there was a fabulous comedy night. Lots of wonderful Crip humour! And it was really great to do so much laughing after the sessions of the day. Because, although the panels and workshops were fabulous, they could be kind of heavy! They touched on a lot of tough issues. So it was great to have some good laughs after all that, and it was a great way to close off the conference! Sadly, there were no events on Sunday.

One of the coolest aspects of the week-end, though, was that I finally did something I’ve been wanting to experiment with for a while but never had the nerve before. But I figured that, if any space should be safe to try it, it should be ROBAM. And it was awesome to find that turned out to be the case! So normally I identify (as female?) and present as very femme. But for a while now, I’ve been strongly tempted every now and then to, as a friend put it, jump the gender fence – not necessarily permanently – LOL I’d miss my girly stuff too much, but every now and then. I’ve come to think of it as my alternate gender alter-ego – a guy called Erik (yes, named for the Phantom). But I’ve never actually presented as that alternate gender alter-ego before. At the conference this week-end, though, I finally decided Oh what the hell and did. And bless the conference folks for being super chill about it, LOL even though I didn’t actually get up my nerve till after I’d registered and so had to ask them to help me alter my name-tag! And it went really well, too. Nobody gave me any crap or weirdness about it! LOL Although, certain people I ran into who knew me kept going on auto-pilot and using my regular name later in the day. I’m not sure if they just weren’t reading my name-tag and going on their memories, or if putting brackets around my “real” name on the tag caused confusion. Pity, too, as the misgendering started just as I was getting comfortable presenting as Erik! So next time I’ll have to register that way from the beginning so that my name-tag’s clean and see if that helps. LOL Although, that’s when I’ll probably get the awkward questions from those particular folks. I ran into other friends, though, who were totally chill and awesome about it. And I really appreciate that! It really helped me get comfortable with how I was trying to present! So overall, it was a good and liberating experience! And it’s one I’ll try again, possibly at next year’s ROBAM, and in other safe spaces where I can find them. Because, it took me almost half the day on Saturday to stop feeling shy and self-conscious about presenting as a guy – LOL or trying to!

Anyway, it was a great week-end. And I’m really looking forward to next year’s conference! I can’t wait to see what their topic will be! And also, for next year I’m really going to try hard not to miss the call-out for papers/presentations (again). Because, I’d really love to present there as well! I don’t yet know what, though. So you’ll have to wait, and come to next year’s ROBAM to find out!

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Meltdown Bingo: Autistic Edition

17 Saturday Jun 2017

Posted by Sarah Erik in disability

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Tags

ableism, activism, Autism, disability

I came across this a while ago, and it was what really, finally made me think/allowed me to think that I might, actually, be somewhere on the Autism spectrum. I’d never thought so before, because all the Autism stereotypes – being hyper-logical, being extremely literal, being unable to grasp the concept of self and other, etc, – didn’t seem to fit. But this piece really fits a lot of my experience! Like, 90 percent or more of it’s right on! As in, I can’t think of the number of times I’ve been in many of the situations described here. So yeah, really helpful!

Source: Meltdown Bingo: Autistic Edition

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